CMT and Me

I have lived with CMT my entire life.  CMT stands for Charcot Marie Tooth.  This is an inherited peripheral Neuropathy.  The form of CMT I have is X linked and affects my hearing, vision and mobility.  Other people may experience problems with foot drop, as well as severe atrophy of the arms and legs.

Regardless of my diagnosis and loss of functionality, I am still a contributing member of society.  While dealing with a degenerative disorder I became the first deaf person to graduate the Savannah School of Design with a degree in Graphic Design.

Twelve years ago Fuzzy Wuzzy Design was born.  This graphic design company specializes in handcrafted greeting cards and clothes.  I amassed over 300 different designs, which are now being used to create custom invitations as well as a product called Silly Signers.

I choose to fight my diagnosis every single day.  I stay very active with physical therapy and going to the gym.  I also continue to express myself artistically; recently taking up sculpting.

It’s important for me to share my story, especially with others who have a similar diagnosis.  I want everyone to see what I've done; my accomplishments in business and use that as inspiration.

To learn more about this disease and what you can do to support people like me, check out this CMTA website.

I have gone blue for CMT, will you?